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Living with hives for 1 year

Upon moving house almost 1 year to the day my first outbreak of hives began.

Covered in red bumpy rash I immediately called non-emergency number to seek an explanation for what had happened. In the first month, several GP visits (who were unsure) only lead to being prescribed fexofenadine and in that time I had 2 blood tests which all came back clear which seemingly switched the GPs worry for me off.

In the following months twice I went to A&E as not only was I covered in the rash, but my lips/eyes swelled up with a sharp feeling in my chest/throat and I was given adrenaline as it was suspected I was having a severe allergic reaction. Several allergy tests followed, finding nothing.

Finally I was referred to the allergy specialist who have given me a dosage of a jab (embarrassingly unsure what it is I was just so keen to try ANYTHING) once a month, and I am about to approach my 6th jab.

It was here they diagnosed me with chronic hives and explained it was not 100% clear the cause or the cure. There has been slight improvements, but at any point I am rundown - long day travelling, day after drinking/partying or stress/anxious from work I will still get a bad outbreak and it frustrates me no end, stops me leaving the house at times and just generally makes me feel incredibly itchy/uncomfortable.

After reading this forum (it was great to find and hear other similar stories to my own) I wondered has anyone else found when they are rundown the main time it comes on? This is to the point where I can have hives, take a nap for an hour or so wake up and it’s completely gone - it’s so weird.

I have learned from reading with it coming on just after I moved and we purchased new furniture, carpets into our new build house it seems possible perhaps something in my home is causing it?

I am past frustrated with this condition and will continue to read this page as I have found hope from other peoples success stories of overcoming this annoying unwelcome speed bump, that has appeared in my life from no where and appears to be adamant on hanging around!

  1. ,
    I'm so glad you found this community and truly appreciate you sharing your experience.
    To hear what you've been going through is beyond frustrating.
    I do hope others in the community will chime in here with their personal experiences.
    In the meantime, I thought I'd share an article that may provide some helpful information: https://chronic-hives.com/diagnosis.
    Always know this community is here for you, reach out anytime.
    Warmly, Doreen (Team Member)

    1. My heart goes out to you I understand completely. This past two years my already very severe allergy to breathing in perfume on others has taken a bad turn for the worse. Used to just affect me in a respiratory way (which was bad enough) but now I get flared up scalp to foot from horrible hives and dermatitis the itching of which nearly drives me insane. Antihistamines barely touch it and I have to take two a day. Trouble is, when your allergy is something you cannot get away from it is a nightmare. I'm glad I found this site. Interesting to note that many people with allergies seem to also have thyroid issues, that is true for me too, I have underactive thyroid.

      1. ,
        Your kind words of support are appreciated.
        I'm so sorry to hear how challenging it has been for you.
        Thyroid problems are more common among people with chronic hives.

        If you haven't seen this yet, I thought I'd share this article that may explain in greater detail: https://chronic-hives.com/causes
        All my best, Doreen (Team Member)

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