You Are Not Alone!
Last updated: December 2022
When you live with a certain health condition like chronic hives, it can sometimes be quite tough and lonely. Especially since I'm increasingly wondering if it's "normal" to feel this way. Through social media I came across a lady who had posted photos of herself because she was looking for answers. As I read her posts it felt so relatable.
I recognized the fear, the questions and especially the uncertainty in her story. I messaged her and suggested we spend some time chatting about chronic hives. The connection between the two of us clicked and talked about our experiences.
It can be a lonely journey
As I listened to her journey, it seemed like she was telling my story. I spent a long time listening to the millions of questions, the emotional journey, and the sad moments where she felt despondent and powerless. Sharing your experience with someone who can finish your sentences is quite powerful when you are in such a situation. She was grateful and felt less lonely after our conversation.
Grateful for our community
I referred her to our website and told her how useful it is to have a community you can fall back on. Without her realizing it, she gave me another push to continue. Because after our conversation I was able to think back to my own moments of uncertainty and searching for answers that never came. I felt grateful for the moment I was able to share with her and especially grateful for the fact that she no longer feels alone.
But how long will it actually take before you no longer feel lonely? I do not know! Because despite being an active part of a great community myself, there are times when I feel frustrated or lonely. It's getting less and less, that's positive. I notice that the moments of loneliness are getting less and less, because I have accepted it. And I also react differently when I notice that my body is not reacting the way I want it to. Just swallow, think of something nice, and then move on. Staying less focused on the lesser and looking for distraction so I can go back to a positive mindset.
Sometimes we need others' experience to help us put things into perspective. One of the best things I get from our community is that we have so many common grounds. We feel powerless, frustrated, and afraid, but on the other hand we are strong, brave and we push hard. Giving up is not an option! And that is something I am very proud of.
The lady indicated that she has recently become more aware of mindfulness. I took her tip with me, because mindfulness can make a big contribution when it comes to reducing stress.
I have planned to delve into mindfulness and see if my triggers decrease. The first thing I came across when I read about mindfulness is this: "Mindfulness is the basic human ability to be fully present, aware of where we are and what we're doing, and not overly reactive or overwhelmed by what's going on around us. While mindfulness is something we all naturally possess, it's more readily available to us when we practice on a daily basis."1
I will continue to share my mindfulness journey with you. If it helps me coping with stress, it might be a good tool for you as well.
How do you cope with the stress that accompanies Chronic-Hives?
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